My life took an unexpected turn when my 4-year-old son, Ivor, was diagnosed with Angelman Syndrome just after his third birthday. This neurogenetic disorder brings severe learning difficulties and issues with movement and balance. Most people with Angelman Syndrome will never talk, and some will never walk, requiring continuous care throughout their lives. The diagnosis turned my world upside down.

I did question whether I was able to carry on working as a solicitor.  It was hard enough being a working mum to three children, and now on top of this I had become a carer too.  Life was literally fit to burst, both practically and emotionally.