In the last six months, COVID-19 has upended our daily lives and fundamentally changed the way we work, interact and coexist. For many individuals and families, the pandemic not only torpedoed summer vacation plans and dashed hopes for a "normal" school year, it also forced many of us to confront somber topics such as illness, death and incapacitation in ways that we may not have before. This is especially true for parents of children with special needs or permanent cognitive disabilities.